Rare Disorders NZ
RDNZ is the respected voice of rare disorders in New Zealand. We are the only national organisation supporting all New Zealanders who live with a rare condition, and the people who care for them.
Our enquiries line, website and support group networks allow patients to access knowledge quickly. We also offer direct support to link people to information on specific rare diseases and to navigate the health system.
We provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases. To do this, RDNZ works with the Government, researchers, clinicians and industry to promote research, diagnosis, treatment and services.